Abstract
Introduction
Our purpose was to: (1) assess the level of consistency between the quality-of-life
(QOL) scores of men with prostate cancer for urinary/bowel/sexual bother, collected
via telephone versus self-administered survey; (2) determine factors associated with
variation in level of agreement; and (3) assess the efficacy of telephone interview
as a mode of administration against the “gold standard” tool, EPIC-26.
Methods
Cohen's Kappa coefficients were calculated to investigate test-retest reliability
across modes of administration. Logistic regression models explored patients' characteristics
associated with the magnitude of urinary/bowel/sexual problem. Sensitivities and specificities
of the telephone mode in reference to “gold standard” were further measured.
Results
From 221 men who agreed to participate in the study, 168 (76.0%) returned completed
surveys. Kappa-linear model resulted in a moderate agreement across the urinary/bowel/sexual
bother scores for both modes of administration; with greatest concordance recorded
for bowel bother (90%). Patient's age (<75 years), disease risk, and active treatment
type determined a moderate-to-good level of agreement between administration modalities
with a Kappa varying between 0.44 and 0.73; χ2, 8.18; P = .042. Sensitivity tests revealed that 68% of men with a moderate/big problem during
the phone interviews would respond to suffering from a moderate/big sexual problem.
Conclusion
Results of this pilot study revealed that QOL outcomes from this registry will likely
underestimate the true bother experienced by men. More research is required to determine
the differences between self-administered and telephone interviews in men with prostate
cancer.
Keywords
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Article info
Publication history
Published online: December 22, 2015
Accepted:
December 16,
2015
Received in revised form:
December 14,
2015
Received:
May 26,
2015
Identification
Copyright
© 2016 Elsevier Inc. All rights reserved.
